Mason had his first speech therapy session today!! We went in, and he met Rachal, the therapist, she gave him some pictures to look at. He labelled them, and talked about them while she jotted some things down. Then her and I sat for a good 1/2 hr and talked about my concerns and some of the things that she had noticed.
She says his articulation is good. It's right about where it should be for a 3y/o, so that's great to hear. His misuse of pronouns is still normal at this age, and that we should start saying things to him like he should say it. For example, instead of saying "You did it! Good Job!" Say "I did it! Good job!" And he will start to pick that up. The main concern is the echolalia, of course. I talked to her, about how he has a hard time sitting down and playing on his own. If I sit down and play w/him, then he can play and interact normally w/me, and will even continue to play after I leave. But, if I say to him "Go play trains for awhile." He won't, and doesn't really seem to know how. Apparently, this is called ideation (sp). Or I should say that ideation is the ability to be able to sit down and play all on his own w/o any help. She said she could see him trying to do that, but he really doesn't know how. What we're going to have to do, is to set a base for him. Essentially get him started, give him choices, and let him go from there. Once he gets a better handle on that, she thinks the echolalia will start to taper off. Kate had made a comment to me last week at social skills therapy, that he would bring her stuff and ask her what they are. These are things he Knows, so it seems that he does that to initiate an interaction. So because of that, his speech therapy (really, language therapy) will be based on social situations. She will be trying to get him to back and forth with her, and then at the end, talk about what they did that day. It will be very play based. She didn't want to say just yet, how delayed he is. After she's had a few more sessions w/him, she said she will have a better understanding of where he is.
I guess that's it! I think it went pretty well, and of course it's good to hear positive things!
Thursday, August 6, 2009
Monday, July 27, 2009
Have I really not updated this in 2 weeks? Wow. The summer is just flying by. We have been so busy! Just got back from camping again this weekend.
Anyway, Mason update.
I've seen some pretty big things lately. Last week, he got on the swing for the first time since he was a baby! He cried, but he didn't fight me getting on it, and I got him smiling a little by tickling him. He wasn't a fan, and he hasn't done it since, but it's a step! All this time, I just thought him not like the swing was a "phase." I didn't realize it was a sensory thing. Anyway, we'll keep trying it.
We went and had a picnic, and then played at the park last monday. There was a little boy, I'd guess 2-1/2ish, who kept following him around. He wasn't about playing w/him at first, but after awhile, he kept looking for him and asking about him. He wanted the little boy to follow him down the slide, but didn't really want to talk to him. It's a start, at least. He did get freaked out when the little boy started waving his arms around. He kept saying "Don't hit me! Don't hit me!" I think this is part of his problem w/other kids his age. They are small, loud, in your face and have unpredictable movements.
The biggest news, is that Friday at therapy, Kate told me he was actively interacting with the other kids!!! This is awesome!!! She also said Hayley (who is participating in the class as a 'peer model') is a little over-protective of him. She watches the other kids around him, and will go sit next to him if he's alone. It's pretty cute, but something we need to watch. We don't want her taking over, or talking for him, which she definately does at home.
We've been working hard on conversation with him, and it's getting better. You still have to repeat the question to him a couple times, but he can usually answer, if only minimally. Still waiting for speech therapy to start. It should be any time now.
I guess that's it. Still trying to stay hopeful that an autism diagnosis is NOT in our future. I'm just so on the fence about it, it really could go either way.
Anyway, Mason update.
I've seen some pretty big things lately. Last week, he got on the swing for the first time since he was a baby! He cried, but he didn't fight me getting on it, and I got him smiling a little by tickling him. He wasn't a fan, and he hasn't done it since, but it's a step! All this time, I just thought him not like the swing was a "phase." I didn't realize it was a sensory thing. Anyway, we'll keep trying it.
We went and had a picnic, and then played at the park last monday. There was a little boy, I'd guess 2-1/2ish, who kept following him around. He wasn't about playing w/him at first, but after awhile, he kept looking for him and asking about him. He wanted the little boy to follow him down the slide, but didn't really want to talk to him. It's a start, at least. He did get freaked out when the little boy started waving his arms around. He kept saying "Don't hit me! Don't hit me!" I think this is part of his problem w/other kids his age. They are small, loud, in your face and have unpredictable movements.
The biggest news, is that Friday at therapy, Kate told me he was actively interacting with the other kids!!! This is awesome!!! She also said Hayley (who is participating in the class as a 'peer model') is a little over-protective of him. She watches the other kids around him, and will go sit next to him if he's alone. It's pretty cute, but something we need to watch. We don't want her taking over, or talking for him, which she definately does at home.
We've been working hard on conversation with him, and it's getting better. You still have to repeat the question to him a couple times, but he can usually answer, if only minimally. Still waiting for speech therapy to start. It should be any time now.
I guess that's it. Still trying to stay hopeful that an autism diagnosis is NOT in our future. I'm just so on the fence about it, it really could go either way.
Monday, July 13, 2009
Therapy day 3
I'm late getting this out! We've just been so busy lately.
I actually didn't go to this therapy appointment. Jerime was off, and wanted to take him, so he went, with Hayley and I stayed home with a napping Payton. Afterwards, the kids had dentists appointments, so they left a few minutes early. He's doing well. Wanting to go, asking for the kids in his class, and even asking to go to therapy (or Feraphi) as he says it. Hayley is participating with the group. They like to have 'typical' peer models. As long as she interacts well, and its not hindering him, she will continue to go and participate. We went to the park, hm, 3 times this week, and the first time, he was excited to see kids, although he didn't really play with them, the 2nd time, he completely segregated himself, and the 3rd time, he spent time with some big boys (9 or 10ish) and he picked up "Come here woman!" from them. Nice. So he's saying that to me everytime I turn around. He wanted nothing to do with the kids at my niece's grad party on Sunday. My niece eventually got him out playing a little, but for the most part, he wanted to sit in the house and watch TV. I couldn't get him out there, at all. If Jerime had been there, and if I could have handed off Payton to him, it might have helped. Baby steps, I guess. There where a lot of people there, and he didn't know most of them.
One thing I've learned through spending time with the parents at therapy, is we all blame ourselves. We wonder what we've done to cause this to happen. You would think, with all of the crap you have to deal with while having a special needs to child, that we would at least be able to escape the parental guilt. Really, I'm just trying not to screw these kids up. He's only 3 and there's already a problem. I wonder when the "why him?" stops. Why my child? Why my only son? He deserves so much better. I absolutely hate this. hm. I better stop and go to bed before I turn this into a pity party. Hopefully things are looking better in the morning.
I actually didn't go to this therapy appointment. Jerime was off, and wanted to take him, so he went, with Hayley and I stayed home with a napping Payton. Afterwards, the kids had dentists appointments, so they left a few minutes early. He's doing well. Wanting to go, asking for the kids in his class, and even asking to go to therapy (or Feraphi) as he says it. Hayley is participating with the group. They like to have 'typical' peer models. As long as she interacts well, and its not hindering him, she will continue to go and participate. We went to the park, hm, 3 times this week, and the first time, he was excited to see kids, although he didn't really play with them, the 2nd time, he completely segregated himself, and the 3rd time, he spent time with some big boys (9 or 10ish) and he picked up "Come here woman!" from them. Nice. So he's saying that to me everytime I turn around. He wanted nothing to do with the kids at my niece's grad party on Sunday. My niece eventually got him out playing a little, but for the most part, he wanted to sit in the house and watch TV. I couldn't get him out there, at all. If Jerime had been there, and if I could have handed off Payton to him, it might have helped. Baby steps, I guess. There where a lot of people there, and he didn't know most of them.
One thing I've learned through spending time with the parents at therapy, is we all blame ourselves. We wonder what we've done to cause this to happen. You would think, with all of the crap you have to deal with while having a special needs to child, that we would at least be able to escape the parental guilt. Really, I'm just trying not to screw these kids up. He's only 3 and there's already a problem. I wonder when the "why him?" stops. Why my child? Why my only son? He deserves so much better. I absolutely hate this. hm. I better stop and go to bed before I turn this into a pity party. Hopefully things are looking better in the morning.
Friday, July 3, 2009
Therapy....Day 2
So before I talk about today's therapy session, I have to give an update about our Michigan trip. I've been so busy this week, I just didn't have time to do it.
Mason, for the first time, EVER, last weekend, initiated and engaged in play w/kids other then his sisters!!! He actually participated in playing w/Connor and Madison, and would even ask them to play. Usually, he will completely segregate himself from the other kids, and IF he's playing in the vicinity of them, it's never w/them. It would just be parallel play. But last weekend he played w/kids his age, that where not his siblings. This is HUGE. Really, just an amazing thing for me to watch. He was funny, because he would call them both "ConnorandMadison", LOL, like they where one person. We didn't bring his DHA up to the lake w/us, and by Saturday night/Sunday morning, that was obvious. I am amazed at the difference it makes in him, especially as far as his focus is concerned.
On to today's therapy session....He was excited and happy to go, and as soon as he saw 2 of the girls in his class, he ran up to them and followed them to play!! So wonderful!! He interacted w/them, also, for the few minutes until therapy began. Lara said he did great today, that he was a lot chattier, and was really into participating w/the class. He did get hung up on a toy shark for awhile ( he LOVES sea creatures), and she mentioned that he really seems to need to have something in his hands all the time. I never really thought about that, but he does constantly have a toy in his hand. I never associated it w/a stimulatory behavior, but now that I think about it, it might be. Or it might be a comfort thing too. He doesn't have to have a certain toy, just something there to be touching (and often mouthing), so it's probably sensory (that makes sense as I write it). He was doing a lot of hand flapping while we where there, and since that's something he only does when he's excited/happy, I at least know that he's really enjoying himself, even though it bothers me a bit that he does it. There are train tracks very near the center, and when a train went by, he was torn between hand flapping his excitement, and covering his ear to block out the stimulation. It was simultaneously funny and disturbing at the same time.
I *should* probably be really happy about today's session, but I'm feeling a little down about it. He did well, and that makes me happy, but it also brought to light another sensory thing he has going on. I'm also worried about how this weekend will go. He remembers the fireworks from last year, when he was terrified of them. He told us they "scare my ears", so I'm not sure how that will go. One of the mom's I was talking to at therapy recommended getting ear phones for him, to block out some of noise, and then he may be able to enjoy the fireworks. I think we will try that (not that I mind if he wants to go in the house, since fireworks scare the crap out of me).
We're also marching in the parade tonight, and I'm on the fence as to whether he's going to love the firetrucks and stuff, or hate it because of the noise and activity. It might actually end up like the train at the center today. It bothers me so much that he might miss out on things because of this. It upsets me that he can't enjoy the things that other kids do. I'm definately having a bit of a my-kid-is-different pity party today.
I guess that's it. Everyone have a wonderful and SAFE (did I mention fireworks scare the hell out of me) weekend!
Mason, for the first time, EVER, last weekend, initiated and engaged in play w/kids other then his sisters!!! He actually participated in playing w/Connor and Madison, and would even ask them to play. Usually, he will completely segregate himself from the other kids, and IF he's playing in the vicinity of them, it's never w/them. It would just be parallel play. But last weekend he played w/kids his age, that where not his siblings. This is HUGE. Really, just an amazing thing for me to watch. He was funny, because he would call them both "ConnorandMadison", LOL, like they where one person. We didn't bring his DHA up to the lake w/us, and by Saturday night/Sunday morning, that was obvious. I am amazed at the difference it makes in him, especially as far as his focus is concerned.
On to today's therapy session....He was excited and happy to go, and as soon as he saw 2 of the girls in his class, he ran up to them and followed them to play!! So wonderful!! He interacted w/them, also, for the few minutes until therapy began. Lara said he did great today, that he was a lot chattier, and was really into participating w/the class. He did get hung up on a toy shark for awhile ( he LOVES sea creatures), and she mentioned that he really seems to need to have something in his hands all the time. I never really thought about that, but he does constantly have a toy in his hand. I never associated it w/a stimulatory behavior, but now that I think about it, it might be. Or it might be a comfort thing too. He doesn't have to have a certain toy, just something there to be touching (and often mouthing), so it's probably sensory (that makes sense as I write it). He was doing a lot of hand flapping while we where there, and since that's something he only does when he's excited/happy, I at least know that he's really enjoying himself, even though it bothers me a bit that he does it. There are train tracks very near the center, and when a train went by, he was torn between hand flapping his excitement, and covering his ear to block out the stimulation. It was simultaneously funny and disturbing at the same time.
I *should* probably be really happy about today's session, but I'm feeling a little down about it. He did well, and that makes me happy, but it also brought to light another sensory thing he has going on. I'm also worried about how this weekend will go. He remembers the fireworks from last year, when he was terrified of them. He told us they "scare my ears", so I'm not sure how that will go. One of the mom's I was talking to at therapy recommended getting ear phones for him, to block out some of noise, and then he may be able to enjoy the fireworks. I think we will try that (not that I mind if he wants to go in the house, since fireworks scare the crap out of me).
We're also marching in the parade tonight, and I'm on the fence as to whether he's going to love the firetrucks and stuff, or hate it because of the noise and activity. It might actually end up like the train at the center today. It bothers me so much that he might miss out on things because of this. It upsets me that he can't enjoy the things that other kids do. I'm definately having a bit of a my-kid-is-different pity party today.
I guess that's it. Everyone have a wonderful and SAFE (did I mention fireworks scare the hell out of me) weekend!
Friday, June 26, 2009
First Day of Therapy!!!
This has to be quick, because we are leaving for Michigan in a couple hours, and I have tons of packing to do still!
Mason had his first day of Social Skills Therapy today!!! I was SO nervous about it. And also a little skeptical. The analysist called on Monday, to tell me to bring him in his bathing suit and sunblock, because if it was nice they where going to go out in the sprinkler. And all I could think was "I'm paying you $40/hr to teach my kid to run through a sprinkler?!" Anywho...
We got there, and I sat down to fill out paperwork, when the Lara (behavior analyst) came up to get the kids. He didn't want to go w/her at first, but then she said they where going outside, and he was all over it!
Lara said he did really well. He needed to pushed a little to interact w/the other kids, but he did do it. He talked to her, and Kate (assistant) and even told them when he had to go potty (huge relief for me, I wasn't sure if he would be telling the teachers at pre school or not). She said he got a little quiet towards the end, and if they had let him, he would've just done his own thing, and not played w/the kids (but that doesn't surprise me). When it was over, he said good-bye to the kids, and Lara and Kate and told me he had fun. They will continue to work on communication, but they said he listened and followed directions well. They had to hold hands w/a buddy, when they walked from one activity to another, and he did that too! I'm really proud of him, and he says he had fun.
It was nice to sit w/other parents who are going down this road. No one asked me why he covered his ears when they turned the sprinkler on, and like 2 other kids did it. I also realized how lucky we are, because a couple of those kids are having a lot bigger issues then Mason is. It's just good to be around other people who "get it." Everyone (family and friends) has been wonderful and supportive, but it's not the same as talking to people who are living it.
Well, we are off for a weekend of boating, fishing, and swimming! (and wine drinking after the kids go to bed) It should be tons of fun!
Have a great weekend, everyone!
Mason had his first day of Social Skills Therapy today!!! I was SO nervous about it. And also a little skeptical. The analysist called on Monday, to tell me to bring him in his bathing suit and sunblock, because if it was nice they where going to go out in the sprinkler. And all I could think was "I'm paying you $40/hr to teach my kid to run through a sprinkler?!" Anywho...
We got there, and I sat down to fill out paperwork, when the Lara (behavior analyst) came up to get the kids. He didn't want to go w/her at first, but then she said they where going outside, and he was all over it!
Lara said he did really well. He needed to pushed a little to interact w/the other kids, but he did do it. He talked to her, and Kate (assistant) and even told them when he had to go potty (huge relief for me, I wasn't sure if he would be telling the teachers at pre school or not). She said he got a little quiet towards the end, and if they had let him, he would've just done his own thing, and not played w/the kids (but that doesn't surprise me). When it was over, he said good-bye to the kids, and Lara and Kate and told me he had fun. They will continue to work on communication, but they said he listened and followed directions well. They had to hold hands w/a buddy, when they walked from one activity to another, and he did that too! I'm really proud of him, and he says he had fun.
It was nice to sit w/other parents who are going down this road. No one asked me why he covered his ears when they turned the sprinkler on, and like 2 other kids did it. I also realized how lucky we are, because a couple of those kids are having a lot bigger issues then Mason is. It's just good to be around other people who "get it." Everyone (family and friends) has been wonderful and supportive, but it's not the same as talking to people who are living it.
Well, we are off for a weekend of boating, fishing, and swimming! (and wine drinking after the kids go to bed) It should be tons of fun!
Have a great weekend, everyone!
Friday, June 19, 2009
T - 7 Days
Until Mason starts group therapy! I'm feeling very optimistic about it. I really feel he's going to do well. Hopefully that's not a naive opinion. We are leaving that afternoon for Michigan, so I'll try and do a quick update before we go. If it goes really bad, Kris and Mich can watch my kids and I'll just get really drunk Friday night at the cottage, LOL (like how I put that on you guys??)
Anyway, he's doing well, I'm going to start talking to him about therapy. Not sure how you explain it to a 3y/o, but I guess I'll tell him he's going to play, and to learn how to play w/other kids. I don't think he'll like it much at first. It's certainly going to force him to step out of his confort zone. I'll be there, at the center, but if he's clinging to me, they have a place I can sit and watch w/o him seeing me. This past weekend, he was playing on the back deck, and Jerime was painting the side door of the garage and Mason asked him "Daddy! What are you doing?!" I know it doesn't sound like a big deal, but the fact that he's expressing intrest in what someone else is doing, is huge!! Autistic children are often only intrested in what they are doing, and what they like, etc, so this is a good sign. Plus his speech and sentance structure was correct. He screws up pronouns ALOT. It's getting better, because we are constantly correcting him, and forcing him to say it the right way every. single. time. He says "Can you sit on my lap, mommy?" When he wants to sit on my lap. I'll say "Can I?" and he'll say "Sure!" and then climb up. He just doesn't get it yet. In fact, I've noticed alot, recently, that he really has a hard time correctly answering questions. He might say yes, when he means no, or just say something completely unrelated to what you ask him. That is NOT a good sign. Hopefully these issues will resolve w/ttherapy, though.
On a good note, the therapy center called, and they have an opening for speech! He'll start in the middle of July. I didn't think we would be able to get in for months, since there were 25 kids ahead of him on the waiting list. They'll evaluate him then, and determine what he needs. He definately has a language delay. Fortunately, the bloodsucking insurance company WILL pay for his speech. The pediatrician will write an apraxia of speech DX so they have to pay for it. I'm fairly certain he doesn't have apraxia, this is just a way of ensuring the insurance will pay for it.
I think that's it! I'll definately try and update before we leave for MI next weekend!
Anyway, he's doing well, I'm going to start talking to him about therapy. Not sure how you explain it to a 3y/o, but I guess I'll tell him he's going to play, and to learn how to play w/other kids. I don't think he'll like it much at first. It's certainly going to force him to step out of his confort zone. I'll be there, at the center, but if he's clinging to me, they have a place I can sit and watch w/o him seeing me. This past weekend, he was playing on the back deck, and Jerime was painting the side door of the garage and Mason asked him "Daddy! What are you doing?!" I know it doesn't sound like a big deal, but the fact that he's expressing intrest in what someone else is doing, is huge!! Autistic children are often only intrested in what they are doing, and what they like, etc, so this is a good sign. Plus his speech and sentance structure was correct. He screws up pronouns ALOT. It's getting better, because we are constantly correcting him, and forcing him to say it the right way every. single. time. He says "Can you sit on my lap, mommy?" When he wants to sit on my lap. I'll say "Can I?" and he'll say "Sure!" and then climb up. He just doesn't get it yet. In fact, I've noticed alot, recently, that he really has a hard time correctly answering questions. He might say yes, when he means no, or just say something completely unrelated to what you ask him. That is NOT a good sign. Hopefully these issues will resolve w/ttherapy, though.
On a good note, the therapy center called, and they have an opening for speech! He'll start in the middle of July. I didn't think we would be able to get in for months, since there were 25 kids ahead of him on the waiting list. They'll evaluate him then, and determine what he needs. He definately has a language delay. Fortunately, the bloodsucking insurance company WILL pay for his speech. The pediatrician will write an apraxia of speech DX so they have to pay for it. I'm fairly certain he doesn't have apraxia, this is just a way of ensuring the insurance will pay for it.
I think that's it! I'll definately try and update before we leave for MI next weekend!
Monday, June 8, 2009
Randomness
Mason is going to DNS for sure, YAY! I talked to Donna on Saturday, and he's definately going to go there 2 mornings a week, and then to Westlake, however many days they deem is necessary. Such a small victory! It felt like such a big thing, though. Just the thought of him not going to the nursery school I always thought he'd go to, made the whole thing that much more real. We are so lucky to have found DNS. It's such a wonderful school. Hayley has certainly thrived there the last 2 years. I'm so glad Mason will get to have that experience too.
On Sunday we went to a birthday party. There were a zillion kids there (it was at a park), and it made me sad to watch him. He obviously Wanted to join the other kids, but just didn't know how. I could see on his face that he knew he was missing out on some of the fun, he just didn't know what to do about it. I don't want him to miss out. :( He deserves so much better then that. He had fun, reguardless. Mostly playing on his own, and then one of the older kids (she's 7) took him under her wing for awhile, and he sort of played w/her for a bit. It just doesn't make sense to me. He can ask any one of us to play w/him. But you put him out of the family, and he just doesn't know what to do.
Later, after he ate, he was done w/the kids. He wouldn't even go to the playground anymore. He wanted to run around and chase the birds, lol. But he would not go play even near the kids at that point. He can only tolerate so much, and then he's done. At that point, if you even mention playing w/the kids he'll have a meltdown. He was pretty exhausted by then.
Today, I told him to finish his milk, and he told me "Hey! You go over there and read that book!" So I couldn't see him NOT drink his milk, LOL. The attitude is starting already! Hayley better outgrow it before he's fully in it, or I may throttle them both!
I've been reading a book about sensory processing disorders, and some of it is really hitting home for him. The fact that he hates swinging, the trampoline, and it took him until he was 3 to learn to jump are all big symptoms of sensory issues. Something about not having his feet firmly on the ground really freaks him out. That's probably why he can't pedal his trike yet, too. He wants too, but he is really having a hard time coordinating those muscle movements. It makes me so sad to see him missing out on things. He wants to ride his bike up and down the driveway w/his sister. He wants to join the kids, and do the things they are doing. He just can't seem to do it. I think we will be looking at some physical therapy, come fall.
I got something in the mail from UIC today. Nothing really helpful, though. When I did the intake call w/them, they asked for permission to enter him (us, the girls) in certain studies if he qualifies. One is a genetic study, and one is a sibling study. I said, yes, of course, so hopefully they can find a cause/cure so no one else has to go through this. So the paperwork I got (a dictionary, to be filled out in triplicate) is for those studies. Funny....it's been over a week, and I've gotten no word as to whether or not they will even see him there, but they were awfully quick to send out the paperwork to help them out. I'm not filling it out until I know he'll be evaluated by them.
So, basically, we're just waiting now. Waiting for Group Therapy to start this month. Waiting to hear from the ever-elusive UIC, and waiting for school to start this fall. I am not patient. At all. Waiting sucks!
On Sunday we went to a birthday party. There were a zillion kids there (it was at a park), and it made me sad to watch him. He obviously Wanted to join the other kids, but just didn't know how. I could see on his face that he knew he was missing out on some of the fun, he just didn't know what to do about it. I don't want him to miss out. :( He deserves so much better then that. He had fun, reguardless. Mostly playing on his own, and then one of the older kids (she's 7) took him under her wing for awhile, and he sort of played w/her for a bit. It just doesn't make sense to me. He can ask any one of us to play w/him. But you put him out of the family, and he just doesn't know what to do.
Later, after he ate, he was done w/the kids. He wouldn't even go to the playground anymore. He wanted to run around and chase the birds, lol. But he would not go play even near the kids at that point. He can only tolerate so much, and then he's done. At that point, if you even mention playing w/the kids he'll have a meltdown. He was pretty exhausted by then.
Today, I told him to finish his milk, and he told me "Hey! You go over there and read that book!" So I couldn't see him NOT drink his milk, LOL. The attitude is starting already! Hayley better outgrow it before he's fully in it, or I may throttle them both!
I've been reading a book about sensory processing disorders, and some of it is really hitting home for him. The fact that he hates swinging, the trampoline, and it took him until he was 3 to learn to jump are all big symptoms of sensory issues. Something about not having his feet firmly on the ground really freaks him out. That's probably why he can't pedal his trike yet, too. He wants too, but he is really having a hard time coordinating those muscle movements. It makes me so sad to see him missing out on things. He wants to ride his bike up and down the driveway w/his sister. He wants to join the kids, and do the things they are doing. He just can't seem to do it. I think we will be looking at some physical therapy, come fall.
I got something in the mail from UIC today. Nothing really helpful, though. When I did the intake call w/them, they asked for permission to enter him (us, the girls) in certain studies if he qualifies. One is a genetic study, and one is a sibling study. I said, yes, of course, so hopefully they can find a cause/cure so no one else has to go through this. So the paperwork I got (a dictionary, to be filled out in triplicate) is for those studies. Funny....it's been over a week, and I've gotten no word as to whether or not they will even see him there, but they were awfully quick to send out the paperwork to help them out. I'm not filling it out until I know he'll be evaluated by them.
So, basically, we're just waiting now. Waiting for Group Therapy to start this month. Waiting to hear from the ever-elusive UIC, and waiting for school to start this fall. I am not patient. At all. Waiting sucks!
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